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Some helpful tools to support community engagement

This tool box is focussed on HIV research, however some of the material could be adapted for other disease areas and these do provide good examples. Others views would be welcome - and other similar examples, perhaps for other disease areas?

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Bookmarked by The Editorial Team on 13 Jul 2010

Strengthening the Informed Consent Process in International Health Research...

Link to online article about improving the informed consent through Community Engagement: The KEMRI-Wellcome Trust Research Programme Experience.
Samson Muchina Kinyanjui and colleagues from the KEMRI-Wellcome Trust Research Programme discuss how they modified their informed consent processes by taking into account local social, cultural, and economic contexts in the design and administration of consent forms.

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Bookmarked by The Editorial Team on 9 Nov 2011

Systematic review of community engagement approach in research: describing partnership approaches, challenges and benefits

by Getachew Redeae Taffere, Haftom Temesgen Abebe, Zenawi Zerihun, Christian Mallen, Helen P. Price, Afework Mulugeta

A systematic review of community engagement with health research.

16th July 2024 • comment
8th February 2024 • comment

The need for empathetic healthcare systems

by Angeliki Kerasidou, Kristine Bærøe, Zackary Berger, Amy E Caruso Brown
23rd September 2020 • comment

Community engagement is increasingly promoted to strengthen the ethics of medical research in low-income countries. One strategy is to use community advisory boards (CABs): semi-independent groups that can potentially safeguard the rights of study participants and help improve research. However, there is little published on the experience of operating and sustaining CABs.

12th March 2013 • comment

This bibliography is a work in progress and is regularly revised. We are currently updating it to link to any listed papers that are available via open access. If there are papers we're missing, or if you have other comments, please let us know by writing to info@globalhealthbioethics.org.

2nd April 2012 • comment

Aligning Community Engagement With Traditional Authority Structures in Global Health Research: A Case Study From Northern Ghana

by Paulina O. Tindana, Linda Rozmovits, Renaud F. Boulanger, Sunita V. S. Bandewar, Raymond A. Aborigo, Abraham V. O. Hodgson, Pamela Kolopack, James V. Lavery
13th February 2012 • comment

UPDATED: August 2011. This bibliography primarily lists references for papers published on the topic of informed consent (especially as it relates to empirical studies carried out in developing countries), and the topic of community engagement (again, focusing on studies carried out in developing countries). We would like to keep this bibliography comprehensive and updated. Please let us know if we are missing any papers on these topics.

8th August 2011 • comment

This is the Report from the "Consent to and Community Engagement in Health Research" workshop, which took place between 28 Feb - 03 Mar 2011 in Kilifi, Kenya. The workshop built upon an emerging collaboration between the Ethox Centre in Oxford, the Social and Behavioural Research Group at the Wellcome-KEMRI Unit in Kilifi, the Liverpool School of Tropical Medicine and the Mahidol - Oxford Tropical Medicine Research Unit in Thailand.

1st August 2011 • comment